webinar info

Pelvic Pain Explained: Endometriosis + Resource List

In Endometriosis by Jandra Mueller2 Comments

By Jandra Mueller, DPT, PHRC Encinitas

At PHRC we want to do our part to help people better understand pelvic pain syndromes and more importantly, help people suffering with these diagnoses get the help they need to recover. Since knowledge is power we created 6 videos and blog posts that we hope people find useful. This week, in our sixth webinar of the Pelvic Pain Explained Webinar series, I had the honor of talking about a topic I feel passionately about: endometriosis. Endometriosis is a complex disease that many women suffer from. There is a huge need for education in this population and in  this webinar I hope to do just that, educate more people about this disease! Hopefully the information in my webinar and in this blog posts will help people better understand how their symptoms happened and arm them with the tools they need to get better. Listed below are many of the resources I use and I mention many of them in the webinar. 

In case you missed it, here is a link to my Endometriosis Webinar

Podcasts

“The Endometriosis Podcast” by Nicholas Fogelson 

“Natural MD Radio” by Aviva Romm (the episode specifically on magnesium for women is what I referenced in the blog post, but she has really great ones!) 

iCareBetter: Endometriosis Unplugged hosted by Jandra Mueller, DPT, MS

Listen on Apple Podcasts or Spotify

 

Some other podcasts that may be relevant are:

PHRC’s co-founder Stephanie Prendergast’s interview on vulvodynia and Vestibulodynia

Physical and Occupational Therapy for Pelvic Health and Pain Relief Stephanie Prendergast’s interview with Lorraine Faehndrich 

 

Blog Posts

These blog posts all have relevance for those women suffering from endo and/or if you have been on oral contraceptives or had hormonal treatment for endo related symptoms. 

Endometriosis: Beyond the lesions

Thinking outside the gut: could endometriosis be the culprit behind your constipation or bloating? 

Managing life on or after “the pill”

Jagged Little Pill: How Oral Contraceptives Wreak Havoc on the Female Body

Treatment solutions for endometriosis 

 

Youtube Videos

Pelvic Pain After Endometriosis Surgery

Everything You NEED to Know About Endometriosis

Getting to Know Your Vulva

 

Instagram Lives

Endometriosis live with Dr. Iris Kerin Orbuch

What is Endo & how Pelvic PT is beneficial Live w/ LJ Powerhouse Endo Part 1

Live w/ LJ Powerhouse Endo Part 2

 

Free Articles 

Chronic pelvic pain and endometriosis: translational evidence of the relationship and implications.

 

Books

Beating Endo by Iris Orbuch, MD & Amy Stein, DPT

The Doctor will see you now by Tamer Seckin, MD

 

Useful Websites/groups

Facebook groups: Nancy’s Nook & Endometropolis

Endo What?

The endo.co

Endofound.org

iCareBetter

 

How to find informed medical providers

Need to find a specialist? Check out iCarebetter’s ‘Find a Specialist’

International Pelvic Pain Society Find a Provider

American Physical and Occupational Therapy Association’s Section on Women’s Health PT Locator

Herman and Wallace Find a Provider

Pelvic Guru Provider Directory

 

Self Treatment Tools

Foam roller

The Stick 

Theracane

PelviWand/TheraWand

 

Cushions

Tush Cush

Cushion your Assets

Kabooti

Theraseat

Is there something we did not cover that you would like to know or hear about? Share your comments!

 

FAQ

What are pelvic floor muscles?

The pelvic floor muscles are a group of muscles that run from the coccyx to the pubic bone. They are part of the core, helping to support our entire body as well as providing support for the bowel, bladder and uterus. These muscles help us maintain bowel and bladder control and are involved in sexual pleasure and orgasm. The technical name of the pelvic floor muscles is the Levator Ani muscle group. The pudendal nerve, the levator ani nerve, and branches from the S2 – S4 nerve roots innervate the pelvic floor muscles. They are under voluntary and autonomic control, which is a unique feature only they possess compared to other muscle groups.

What is pelvic floor physical and occupational therapy?

Pelvic floor physical and occupational therapy is a specialized area of physical and occupational therapy. Currently, physical and occupational therapistss need advanced post-graduate education to be able to help people with pelvic floor dysfunction because pelvic floor disorders are not yet being taught in standard physical and occupational therapy curricula. The Pelvic Health and Rehabilitation Center provides extensive training for our staff because we recognize the limitations of physical and occupational therapy education in this unique area.

What happens at pelvic floor therapy?

During an evaluation for pelvic floor dysfunction the physical and occupational therapists will take a detailed history. Following the history the physical and occupational therapists will leave the room to allow the patient to change and drape themselves. The physical and occupational therapists will return to the room and using gloved hands will perform an external and internal manual assessment of the pelvic floor and girdle muscles. The physical and occupational therapists will once again leave the room and allow the patient to dress. Following the manual examination there may also be an examination of strength, motor control, and overall biomechanics and neuromuscular control. The physical and occupational therapists will then communicate the findings to the patient and together with their patient they establish an assessment, short term and long term goals and a treatment plan. Typically people with pelvic floor dysfunction are seen one time per week for one hour for varying amounts of time based on the severity and chronicity of the disease. A home exercise program will be established and the physical and occupational therapists will help coordinate other providers on the treatment team. Typically patients are seen for 3 months to a year.

What is pudendal neuralgia and how is it treated?

Pudendal Neuralgia is a clinical diagnosis that means pain in the sensory distribution of the pudendal nerve. The pudendal nerve is a mixed nerve that exits the S2 – S4 sacral nerve roots, we have a right and left pudendal nerve and each side has three main trunks: the dorsal branch, the perineal branch, and the inferior rectal branch. The branches supply sensation to the clitoris/penis, labia/scrotum, perineum, anus, the distal ⅓ of the urethra and rectum, and the vulva and vestibule. The nerve branches also control the pelvic floor muscles. The pudendal nerve follows a tortuous path through the pelvic floor and girdle, leaving it vulnerable to compression and tension injuries at various points along its path.

Pudendal Neuralgia occurs when the nerve is unable to slide, glide and move normally and as a result, people experience pain in some or all of the above-mentioned areas. Pelvic floor physical and occupational therapy plays a crucial role in identifying the mechanical impairments that are affecting the nerve. The physical and occupational therapy treatment plan is designed to restore normal neural function. Patients with pudendal neuralgia require pelvic floor physical and occupational therapy and may also benefit from medical management that includes pharmaceuticals and procedures such as pudendal nerve blocks or botox injections.

What is interstitial cystitis and how is it treated?

Interstitial Cystitis is a clinical diagnosis characterized by irritative bladder symptoms such as urinary urgency, frequency, and hesitancy in the absence of infection. Research has shown the majority of patients who meet the clinical definition have pelvic floor dysfunction and myalgia. Therefore, the American Urologic Association recommends pelvic floor physical and occupational therapy as first-line treatment for Interstitial Cystitis. Patients will benefit from pelvic floor physical and occupational therapy and may also benefit from pharmacologic management or medical procedures such as bladder instillations.

Who is the Pelvic Health and Rehabilitation Team?

The Pelvic Health and Rehabilitation Center was founded by Elizabeth Akincilar and Stephanie Prendergast in 2006, they have been treating people with pelvic floor disorders since 2001. They were trained and mentored by a medical doctor and quickly became experts in treating pelvic floor disorders. They began creating courses and sharing their knowledge around the world. They expanded to 11 locations in the United States and developed a residency style training program for their employees with ongoing weekly mentoring. The physical and occupational therapistss who work at PHRC have undergone more training than the majority of pelvic floor physical and occupational therapistss and as a result offer efficient and high quality care.

How many years of experience do we have?

Stephanie and Liz have 24 years of experience and help each and every team member become an expert in the field through their training and mentoring program.

Why PHRC versus anyone else?

PHRC is unique because of the specific focus on pelvic floor disorders and the leadership at our company. We are constantly lecturing, teaching, and staying ahead of the curve with our connections to medical experts and emerging experts. As a result, we are able to efficiently and effectively help our patients restore their pelvic health.

Do we treat men for pelvic floor therapy?

The Pelvic Health and Rehabilitation Center is unique in that the Cofounders have always treated people of all genders and therefore have trained the team members and staff the same way. Many pelvic floor physical and occupational therapistss focus solely on people with vulvas, this is not the case here.

Do I need pelvic floor therapy forever?

The majority of people with pelvic floor dysfunction will undergo pelvic floor physical and occupational therapy for a set amount of time based on their goals. Every 6 -8 weeks goals will be re-established based on the physical improvements and remaining physical impairments. Most patients will achieve their goals in 3 – 6 months. If there are complicating medical or untreated comorbidities some patients will be in therapy longer.

Comments

  1. I highly suggest looking at qualified excision surgeons. Excision is the gold standard of surgery for endo. Nancy’s Nook group on Facebook has a vetted list of excision specialists, and those are the doctors you should consult before having any endo related surgeries.

Leave a Comment