By Sara Stuart
Pelvic pain can present itself in a number of ways. For Amanda* (name has been changed for anonymity), her symptoms began with her first menses. “I remember being on a cruise to Mexico with my mom and trying to learn how to put a tampon in for the first time. I spent the time either crying or laughing in 5 minute intervals until after an hour I gave up altogether.” Despite the frustration she felt, Amanda was able to successfully insert a tampon three years later, a huge milestone for her. Unfortunately, as is the case for a large amount of people suffering from pelvic pain, Amanda’s symptoms changed over time- and for the worse. “However, it wasn’t until I was a senior in high school that I developed chronic pelvic pain that wasn’t associated with my cycle. I had developed a very specific hot, bloated, localized, shaped like a ball, pain in my lower right abdomen. The pain was constant and things like stretching, coughing, and sneezing made it worse. Then I noticed that the pain started showing up on the other side of my abdomen and the cramps that accompanied my menstrual cycle were now present 3 out of the 4 weeks of my cycle.“ Amanda’s new onset of symptoms stayed with her for quite some time and she began to seek treatment to alleviate her symptoms.
As can often be the case, Amanda had difficulty getting onto the right care plan. “It unfortunately took me several years, several doctors, and several misdiagnoses before I was accurately diagnosed.” Amanda wasn’t put on the right track until one of her friends pointed her in the right direction, to a gynecologist with knowledge of pelvic pain and treatment options. Within the first minute of Amanda’s gynecological exam, she received a diagnosis and options to help her pain! Amanda was ecstatic that she had finally found someone who understood her pain and, more importantly, had a plan to help her alleviate her pain. it wasn’t until Amanda relocated to the San Francisco bay area that she found PHRC. Amanda’s doctor referred her to a colleague who knew that Amanda’s symptoms could be alleviated through pelvic floor physical therapy; the colleague quickly referred Amanda to PHRC.
Amanda knew that PHRC was the right place to help her from the beginning. “I loved my first phone call with PHRC. I was really excited that I was speaking with an agency who knew what I needed, because I sure as hell didn’t. The woman I spoke with was really helpful and super friendly. I had a lot of silly questions that she answered without judgment. “ Often, new patients to PHRC are confused, hurt, and misguided from navigating the healthcare industry themselves. These prospective patients often have a wide variety of questions, mostly aimed at making sure that they have found somewhere that can help them to find the treatment best for their pelvic pain or dysfunction. The path to recovery for pelvic pain and pelvic dysfunction patients is hardly ever easy to find. To help those suffering from pelvic pain and dysfunction, Stephanie and Liz have written a book about treatment options for pelvic pain and dysfunction to help others find the care that they need (click here for a sneak peak at the book, “Pelvic Pain Explained”, which will be released early 2016). Before her first appointment, Amanda’s treating therapist, Malinda Wright, MPT, emailed Amanda to introduce herself and to invite her to ask any questions that she might have. When the day came for Amanda’s first appointment, she recalls that, “… (Malinda) was very warm and inviting”, Amanda recalls of Malinda during her first appointment. Peace of mind came almost immediately as Amanda quickly realized that “… Malinda knew exactly what the cause of my pain was and it’s such a relief that after so many years of trying without success to figure out my problem that Malinda knew how to help me from day one.”
With a stressful full-time job and a full calendar as a graduate student, Amanda has high stress levels in her life. “I’ve learned that, like most people, when I’m stressed I tense up my muscles and I find that by the time I get home and I’ve processed my day my pain can be pretty bad.” Using the tools and techniques that she has learned from Malinda Wright, MPT at PHRC, Amanda is able to take time out of her day to relax and de-stress before going back to work.
As with any journey, recovery from pelvic pain often isn’t a straight line, flare-ups can occur (read here to learn about what to do during a flare). “I definitely have flare-ups”, Amanda recalls. Despite the occasional set back from a flare, Amanda’s quality of life has vastly improved“That being said, my life is actually functional now! Before my weekly visits with Malinda I would never have been able to physically sustain this level of stress at my job so I am happy to have the occasional flare up instead of the constant debilitating pain.” Amanda has some wise words for anyone suffering from pelvic pain or pelvic dysfunction: manage stress wisely. Amanda advises, “…that you take care of yourself by eliminating as much as stress as you can. Hopefully you’ll notice a difference in your pain level.“
Thanks Amanda! Wishing you the best on your journey to recovery from your pelvic pain.
Kind Regards,
Sara
Sara Stuart graduated from UCLA in June 2013. With a life-long passion for helping others, she assists the Los Angeles office with all of their administrative needs. Sara is also an avid writer and reader and contributes to various online publications in her free time.
FAQ
What are pelvic floor muscles?
The pelvic floor muscles are a group of muscles that run from the coccyx to the pubic bone. They are part of the core, helping to support our entire body as well as providing support for the bowel, bladder and uterus. These muscles help us maintain bowel and bladder control and are involved in sexual pleasure and orgasm. The technical name of the pelvic floor muscles is the Levator Ani muscle group. The pudendal nerve, the levator ani nerve, and branches from the S2 – S4 nerve roots innervate the pelvic floor muscles. They are under voluntary and autonomic control, which is a unique feature only they possess compared to other muscle groups.
What is pelvic floor physical therapy?
Pelvic floor physical therapy is a specialized area of physical therapy. Currently, physical therapists need advanced post-graduate education to be able to help people with pelvic floor dysfunction because pelvic floor disorders are not yet being taught in standard physical therapy curricula. The Pelvic Health and Rehabilitation Center provides extensive training for our staff because we recognize the limitations of physical therapy education in this unique area.
What happens at pelvic floor therapy?
During an evaluation for pelvic floor dysfunction the physical therapist will take a detailed history. Following the history the physical therapist will leave the room to allow the patient to change and drape themselves. The physical therapist will return to the room and using gloved hands will perform an external and internal manual assessment of the pelvic floor and girdle muscles. The physical therapist will once again leave the room and allow the patient to dress. Following the manual examination there may also be an examination of strength, motor control, and overall biomechanics and neuromuscular control. The physical therapist will then communicate the findings to the patient and together with their patient they establish an assessment, short term and long term goals and a treatment plan. Typically people with pelvic floor dysfunction are seen one time per week for one hour for varying amounts of time based on the severity and chronicity of the disease. A home exercise program will be established and the physical therapist will help coordinate other providers on the treatment team. Typically patients are seen for 3 months to a year.
What is pudendal neuralgia and how is it treated?
Pudendal Neuralgia is a clinical diagnosis that means pain in the sensory distribution of the pudendal nerve. The pudendal nerve is a mixed nerve that exits the S2 – S4 sacral nerve roots, we have a right and left pudendal nerve and each side has three main trunks: the dorsal branch, the perineal branch, and the inferior rectal branch. The branches supply sensation to the clitoris/penis, labia/scrotum, perineum, anus, the distal ⅓ of the urethra and rectum, and the vulva and vestibule. The nerve branches also control the pelvic floor muscles. The pudendal nerve follows a tortuous path through the pelvic floor and girdle, leaving it vulnerable to compression and tension injuries at various points along its path.
Pudendal Neuralgia occurs when the nerve is unable to slide, glide and move normally and as a result, people experience pain in some or all of the above-mentioned areas. Pelvic floor physical therapy plays a crucial role in identifying the mechanical impairments that are affecting the nerve. The physical therapy treatment plan is designed to restore normal neural function. Patients with pudendal neuralgia require pelvic floor physical therapy and may also benefit from medical management that includes pharmaceuticals and procedures such as pudendal nerve blocks or botox injections.
What is interstitial cystitis and how is it treated?
Interstitial Cystitis is a clinical diagnosis characterized by irritative bladder symptoms such as urinary urgency, frequency, and hesitancy in the absence of infection. Research has shown the majority of patients who meet the clinical definition have pelvic floor dysfunction and myalgia. Therefore, the American Urologic Association recommends pelvic floor physical therapy as first-line treatment for Interstitial Cystitis. Patients will benefit from pelvic floor physical therapy and may also benefit from pharmacologic management or medical procedures such as bladder instillations.
Who is the Pelvic Health and Rehabilitation Team?
The Pelvic Health and Rehabilitation Center was founded by Elizabeth Akincilar and Stephanie Prendergast in 2006, they have been treating people with pelvic floor disorders since 2001. They were trained and mentored by a medical doctor and quickly became experts in treating pelvic floor disorders. They began creating courses and sharing their knowledge around the world. They expanded to 11 locations in the United States and developed a residency style training program for their employees with ongoing weekly mentoring. The physical therapists who work at PHRC have undergone more training than the majority of pelvic floor physical therapists and as a result offer efficient and high quality care.
How many years of experience do we have?
Stephanie and Liz have 24 years of experience and help each and every team member become an expert in the field through their training and mentoring program.
Why PHRC versus anyone else?
PHRC is unique because of the specific focus on pelvic floor disorders and the leadership at our company. We are constantly lecturing, teaching, and staying ahead of the curve with our connections to medical experts and emerging experts. As a result, we are able to efficiently and effectively help our patients restore their pelvic health.
Do we treat men for pelvic floor therapy?
The Pelvic Health and Rehabilitation Center is unique in that the Cofounders have always treated people of all genders and therefore have trained the team members and staff the same way. Many pelvic floor physical therapists focus solely on people with vulvas, this is not the case here.
Do I need pelvic floor therapy forever?
The majority of people with pelvic floor dysfunction will undergo pelvic floor physical therapy for a set amount of time based on their goals. Every 6 -8 weeks goals will be re-established based on the physical improvements and remaining physical impairments. Most patients will achieve their goals in 3 – 6 months. If there are complicating medical or untreated comorbidities some patients will be in therapy longer.
Comments
Thanks for sharing the life experience with us. I learned a lot from her.
Hello how can I contact Amanda ? I am experiencing this and would love to speak with a success story. Please reach out