By Jandra Mueller, DPT, PHRC Encinitas
At PHRC we want to do our part to help people better understand pelvic pain syndromes and more importantly, help people suffering with these diagnoses get the help they need to recover. Since knowledge is power we created 6 videos and blog posts that we hope people find useful. This week, in our sixth webinar of the Pelvic Pain Explained Webinar series, I had the honor of talking about a topic I feel passionately about: endometriosis. Endometriosis is a complex disease that many women suffer from. There is a huge need for education in this population and in this webinar I hope to do just that, educate more people about this disease! Hopefully the information in my webinar and in this blog posts will help people better understand how their symptoms happened and arm them with the tools they need to get better. Listed below are many of the resources I use and I mention many of them in the webinar.
In case you missed it, here is a link to my Endometriosis Webinar.
Podcasts
“The Endometriosis Podcast” by Nicholas Fogelson
Some other podcasts that may be relevant are:
PHRC’s co-founder Stephanie Prendergast’s interview on vulvodynia and vestibulodynia
Blog Posts
These blog posts all have relevance for those women suffering from endo and/or if you have been on oral contraceptives or had hormonal treatment for endo related symptoms.
Endometriosis: Beyond the lesions
Thinking outside the gut: could endometriosis be the culprit behind your constipation or bloating?
Managing life on or after “the pill”
Jagged Little Pill: How Oral Contraceptives Wreak Havoc on the Female Body
Treatment solutions for endometriosis
Youtube Videos
Pelvic Pain After Endometriosis Surgery
Everything You NEED to Know About Endometriosis
Instagram Lives
Endometriosis live with Dr. Iris Kerin Orbuch
What is Endo & how Pelvic PT is beneficial Live w/ LJ Powerhouse Endo Part 1
Live w/ LJ Powerhouse Endo Part 2
Free Articles
Chronic pelvic pain and endometriosis: translational evidence of the relationship and implications.
Books
Beating Endo by Iris Orbuch, MD & Amy Stein, DPT
The Doctor will see you now by Tamer Seckin, MD
Useful Websites/groups
Facebook groups: Nancy’s Nook & Endometropolis
How to find informed medical providers
International Pelvic Pain Society Find a Provider
American Physical Therapy Association’s Section on Women’s Health PT Locator
Herman and Wallace Find a Provider
Pelvic Guru Provider Directory
Self Treatment Tools
Cushions
Is there something we did not cover that you would like to know or hear about? Share your comments!
Comments
Highly Recommend the book, “Breaking Through Chronic Pelvic Pain: A Holistic Approach for Relief” as a comprehensive starting point:
https://amzn.to/2EIPzvu
I highly suggest looking at qualified excision surgeons. Excision is the gold standard of surgery for endo. Nancy’s Nook group on Facebook has a vetted list of excision specialists, and those are the doctors you should consult before having any endo related surgeries.